Progeria Connect is a private, online social platform for members of the The Progeria Research Foundation’s global community, built to connect and unite our small but diverse network of families in a secure and confidential environment. Once a member is accepted into Progeria Connect, patients, family members, researchers and clinicians, and other caregivers will have access to:
Current news and information: stay updated with the latest research and other Progeria-related news;
Live activity feeds: see what other members are up to and share experiences;
Member forums: ask questions and join conversations;
Private messaging: for 1-to-1 conversations with another member;
Member directory: easily find and contact other site members around the world;
Private user groups: connect with members of the community who share common interests;
Host and attend online events: no matter where you are in the world!

Feature Breakdown

Powerful search & targeting filters that enable members of the community to find and connect with each other easily and effortlessly;

Post and share messages with other members to see via a news feed. Add pictures, videos or links;

Organize or attend virtual meetups for your community and add them to your calendar;

Push your events to your Facebook, LinkedIn, and Twitter pages to boost exposure and attendance;

Leverage your community network to publicize your projects, research, foundations and campaigns;

Contribute to discussion forums around specific topics;

Join community groups within the broader community to allow you to connect with like-minded people on a similar journey;

Planning a trip abroad? Let local members know you when you will be there and see who is available to meet up;

Communicate with other members through Direct Messaging;

Tag people in your posts or comments to make sure they see them and hashtag your posts to make them searchable.